Office of Rare Diseases Research

Anne R. Pariser, M.D., Director of the Office of Rare Diseases Research

The Office of Rare Diseases Research is a division of the US National Center for Advancing Translational Sciences (NCATS) that oversees the Rare Diseases Clinical Research Network and Genetic and Rare Diseases Information Center.[1]

History

The Office of Rare Diseases Research was established in 1993 within the Office of the Director of the NIH. Its responsibilities were mandated by statute by the Rare Diseases Act of 2002.[2][3] In 2011, the office became part of the newly created NCATS.[4] ORDR is currently headed by Dr. Anne R. Pariser, who took over the position in February 2018.[5]

References

  1. ^ "Divisions & Offices". National Center for Advancing Translational Sciences. National Institutes of Health. Retrieved 8 July 2018.
  2. ^ "The Office of Rare Diseases Research (ORDR)". Rare Diseases Clinical Research Network. Retrieved 8 July 2018.
  3. ^ "Office of Rare Diseases Research (ORDR) Brochure". Genetic and Rare Diseases Information Center. National Institutes of Health. Retrieved 8 July 2018.
  4. ^ "Kaufmann Appointed Head of NCATS' Office of Rare Diseases Research". National Center for Advancing Translational Sciences (Press release). National Institutes of Health. September 2015. Retrieved 8 July 2018.
  5. ^ "Staff Profile: Anne R. Pariser". National Center for Advancing Translational Sciences.