Hearing Voices Networks, closely related to the Hearing Voices Movement, are peer-focused national organizations for people who hear voices (commonly referred to as auditory hallucinations) and supporting family members, activists and mental health practitioners. Members may or may not have a psychiatric diagnosis. Networks promote an alternative approach, where voices are not necessarily seen as signs of mental illness and regard hearing voices as a meaningful and understandable, although unusual, human variation.[1] Voices are not seen as the problem, rather it is the relationship the person has with their voices that is regarded as the main issue.[2]
Development
The first hearing voices network was founded in the Netherlands in 1987 by the Dutch psychiatrist Marius Romme, the science journalist, Sandra Escher, and voice hearer, Patsy Hage.[3] This was followed by the founding of the UK network in 1988 based in Manchester, England. Subsequently networks have been established in 29 countries over the world, including Australia, Canada, the UK, and the United States.[4] The first 15 years of the global networks' development is outlined by Adam James in his book Raising Our Voices (2001).[5]
The National and Regional Networks are affiliated with the international umbrella organization known as INTERVOICE (The International Network for Training Education and Research into Hearing Voices) and often referred to as the Hearing Voices Movement. Within these international networks, the combined experience of voice-hearers and professionals have overseen the development of ways of working with people who hear voices, drawing on the value of peer support and helping people live peacefully and positively with their experiences.
Purpose
The principal roles of Hearing Voices Networks are as follows:
To support and develop local Hearing Voices Support Groups
Raise awareness of the hearing voices approach
To campaign for human rights and social justice for people who hear voices
To provide information, advice and support to people who hear voices, their family, friends
To provide training and education for mental health services and practitioners
Practices and philosophy
These networks are designed to support voice hearers specifically through local hearing voices support groups, where people who hear voices are afforded the opportunity in a non-medical setting to share their experiences, coping mechanisms, and explanatory frameworks. These groups are run in different ways and some are exclusive to individuals who hear voices, while others are supported by mental health workers.[6] Groups are based in a range of settings, from community centers, libraries, churches, child and adolescent mental health services, prisons, and inpatient units.[citation needed]
Groups are designed to function as peer support groups meant foster socialization and belonging, not therapy and treatment.[citation needed] Members are encouraged to talk about their experiences, to learn what the voices mean to them, and how to gain control over their experiences.[citation needed] Should members desire to, groups can help members explore the relationship between their life history and their experience of hearing voices.[7]
Studies show that members found attending hearing voices groups a largely positive experience, being able to share their experiences and explore and experiment with different coping strategies.[8] Members also said that attending improved their self esteem, helped them make friends, and allowed them to feel more prepared for the future.[8]
Studies have found that after attending hearing voices groups, members' hospital bed use decreased and there was a trend for less formal admissions.[9] People's relationships with the voices were mostly improved and heard the voices less frequently.[9] The voices were perceived as less powerful and having less control over them, and participants reported feeling better able to cope the voices and less alone.[9] Importantly, evaluations showed that members improved in what they had identified as their own goals for the group.[10][11]
National networks have developed considerably over the years and host websites, publish newsletters, guides to the voice hearing experience, and workbooks where individuals can record and explore their own experiences with voice hearing.[12]
Romme has provided an intellectual basis for these groups in the book Accepting Voices, where he advocates a view that the hearing of voices is not necessarily an indication of mental illness and that patients should be encouraged to explore their voices and negotiate with them.[13]
References
^McCarthy-Jones S (2013) Hearing Voices - The Histories, Causes and Meanings of Auditory Verbal Hallucinations, Cambridge, Cambridge University Press, pp.346-354
^Romme M. Escher S. Dillon J. Corstens D. Morris M. (2009) Living with Voices: 50 Stories of Recovery, PCCS Books/Birmingham City University
^Escher S. Romme M. The Hearing Voices Movement, Chapter 28 page 385 in “Hallucinations” by Jan Dirk Blom and Iris E.C. Sommer, Editors Springer, New York; Dordrecht; Heidelberg; London (2012).
^Casstevens, Willa J.; Coker, Joy; Sanders, Tia D. (2012) Mentored Self-Help: A Promising Approach to Exploring Voices, Ethical Human Psychology and Psychiatry, Volume 14, Number 2, pp. 110-124(15)
^ abcMeddings S, Walley L, Collins T, Tullett F, McEwan B, Owen K. Are hearing voices groups effective? A
preliminary evaluation. Unpublished manuscript, Sussex, UK. Retrieved from: http://www.intervoiceonline.
org/wpcontent/uploads/2011/03/Voiceseval.pdf. 2004
^Meddings S, Walley L, Collins T, Tullett F, McEwan B. (2006) The voices don't like it. Mental Health Today. Sep:26-30.
^A Ruddle, O Mason, T Wykes (2011) A review of Hearing voices groups: Evidence and mechanisms of change, Clinical psychology review
^Martin, P.J. (2000). "Hearing voices and listening to those that hear them". Journal of Psychiatric and Mental Health Nursing. 7 (2): 135–41. doi:10.1046/j.1365-2850.2000.00276.x. PMID11146909.
^Romme, M. A. J., Escher A. D. M. A. C. (Eds.). (1993). Accepting voices. London: Mind
Blackman, Lisa (2001). Hearing voices, embodiment and experience. London New York: Free Association Books. ISBN9781853435331.
Coleman, Ron; Smith, Mike (1997). Working with voices: victim to victor. Newton-le-Willows, Merseyside: Handsell. ISBN9781903199015.
Dillon, Jacqui; Longden, Eleanor (2011), "Hearing voices groups: creating safe spaces to share taboo experiences", in Romme, Marius A.J.; Escher, Sandra D. (eds.), Psychosis as a personal crisis: an experience based approach, Hove, East Sussex New York, New York: Routledge for The International Society for the Psychological Treatments of the Schizophrenias and other pychoses (ISPS), pp. 129–139, ISBN9780415673303.
Leudar, Ivan; Thomas, Philip (2000). Voices of reason, voices of insanity: studies of verbal hallucinations. London New York: Psychology Press. ISBN9780415147866.
Longden, Eleanor (2013). Learning from the voices in my head. Cambridge: TED Books.
McCarthy-Jones, Simon (2012). Hearing voices: the histories, causes, and meanings of auditory verbal hallucinations. Cambridge: Cambridge University Press. ISBN9781139017534.
Romme, Marius A.J. (1996). Understanding voices: coping with auditory hallucinations and confusing realities. Runcorn, Cheshire: Handsell Publications. ISBN9789072551092.
Romme, Marius A.J.; Escher, Sandra D.; Dillon, Jacqui; Corstens, Dirk; Morris, Mervyn (2009). Living with voices: 50 stories of recovery. Herefordshire: PCCS Books in association with Birmingham City University. ISBN9781906254223.
Watkins, John (2008) [1998]. Hearing voices: a common human experience. Melbourne, Victoria: Michelle Anderson Publishing. ISBN9780855723903.
Articles, chapters and pamphlets
Christine, A. (1990). "Heard but not seen". Independent on Sunday. Independent Print Ltd.
Barker, Paul K. (October 1990). "I hear voices and I'm glad to!". Critical Public Health. 1 (4): 21–27. doi:10.1080/09581599008406791.
Barker, Paul K. (1996). Can you hear me, a research and practice summary. Stavanger: Psykiatrisk Opplysningsfond. OCLC472812459.
Barret, Terry R.; Etheridge, Jane B. (September–October 1992). "Verbal hallucinations in normals, I: people who hear 'voices'". Applied Cognitive Psychology. 6 (5): 379–387. doi:10.1002/acp.2350060503.
Ensink, Bernardine J. (1993). Confusing realities: a study of child sexual abuse and psychiatric symptoms. Amsterdam: VU University Press. ISBN9789053830857.
Haddock, Gillian; Bentall, Richard P.; Slade, Peter D. (1996), "Psychological treatments for auditory hallucinations, focussing or distraction?", in Haddock, Gillian; Slade, Peter D. (eds.), Cognitive-behavioural interventions with psychotic disorders, London: Routledge, pp. 45–71, ISBN9780415102902.
Haddock, Gillian; Bentall, Richard P.; Slade, Peter D. (1993). "Psychological treatment of chronic auditory hallucinations: two case studies". Behavioral and Cognitive Psychotherapy. 21 (4): 335–346. doi:10.1017/S1352465800011668. S2CID146155388.
Holmes, Doug (1998). Hearing voices: Hillary, Angels, and O.J. to the voice-producing brain. Rileyville, Virginia: Shenandoah Psychology Press. ISBN9780966397376.
Haddock G Slade P. Empowering people who hear voices in cognitive behavioral interventions with psychotic disorders, Routledge, London (1996)
Leudar, Ivan; Thomas, Philip (1995). The Verbal Hallucinations Pragmatics Schedule: Guidelines for establishing pragmatic aspects of voice-voice hearer talk. Manchester, UK: Department of Psychology, University of Manchester.
Leudar, Ivan; Thomas, Philip; Johnston, Margaret (October 1992). "Self repair for in dialogues of schizophrenics: effects of hallucinations and negative symptoms". Brain and Language. 43 (3): 487–511. doi:10.1016/0093-934X(92)90114-T. PMID1446215. S2CID11607583.
Leudar, Ivan; Thomas, Philip (2000). Voices of reason, voices of insanity: studies of verbal hallucinations. London New York: Psychology Press. ISBN9780415147866.
Loekhort, Russell A. (September 1975). "Mary's dog is an ear mother: listening to the voices of psychosis". Psychological Perspectives: A Quarterly Journal of Jungian Thought. 6 (2): 144–160. doi:10.1080/00332927508409446.
Posey, Thomas B.; Losch, Mary E. (October 1983). "Auditory hallucinations of hearing voices in 375 normal subjects". Imagination, Cognition and Personality. 3 (2): 99–113. doi:10.2190/74V5-HNXN-JEY5-DG7W. S2CID146310857.
Described in: James, William (1986), "The Census of Hallucinations (1889-1897)", in James, William (ed.), Essays in psychical research, Cambridge, Massachusetts: Harvard University Press, pp. 56–78, ISBN9780674267084.
Slade, Peter D. (1994), "Models of hallucination: from theory to practice", in David, Anthony S.; Cutting, John C. (eds.), The neuropsychology of schizophrenia, Brain, Behaviour and Cognition Series, Hove, UK Hillsdale, USA: Lawrence Erlbaum Associates, Inc., pp. 245–254, ISBN9780863773037.
Slade, Peter D.; Bentall, Richard P. (1988). Sensory deception: towards a scientific analysis of hallucinations. Baltimore: Johns Hopkins University Press. ISBN9780801837609.
Stephens, G. Lynn; Graham, George (2000). When self-consciousness breaks: alien voices and inserted thoughts. Philosophical Pychopathology Series. Cambridge, Massachusetts: MIT Press. ISBN9780262194372.
Tien, Allen Y. (November 1991). "Distributions of hallucinations in the population". Social Psychiatry and Psychiatric Epidemiology. 26 (6): 287–292. doi:10.1007/BF00789221. PMID1792560. S2CID28848635.
Tiihonen, Jari; Hari, Riitta; Naukkarinen, Hannu; Rimón, Ranan; Jousmäki, Veikko; Kajola, Matti (February 1992). "Modified activity of the human auditory cortex during auditory hallucinations". American Journal of Psychiatry. 149 (2): 255–257. doi:10.1176/ajp.149.2.255. PMID1734750.
Yusopoff, Lawrence; Tarrier, Nicholas (1996), "Coping strategy enhancement for persistent hallucinations and delusions", in Haddock, Gillian; Slade, P.D. (eds.), Cognitive, behavioural interventions with psychotic disorders, London: Routledge, pp. 86–103, ISBN9780415102902. Read online.