The Brain Tumour Charity

The Brain Tumour Charity
Founded1996; 29 years ago (1996)
FoundersNeil Dickson, Angela Dickson, Andy Foote
TypeCharitable organisation
Registration no.England and Wales: 1150054 Scotland: SC045081
HeadquartersFleet 27, Rye Close, Fleet, GU51 2UH
Area served
United Kingdom
Key people
Alex Lochrane (CEO)
Revenue£7.61 million (2014/2015)
Websitewww.thebraintumourcharity.org
Formerly called
Samantha Dickson Brain Tumour Trust, Brain Tumour UK, The Joseph Foote Trust

The Brain Tumour Charity is a British charity dedicated to funding research, raising awareness of brain tumours, reducing diagnosis times and providing support and information for people with brain tumours, their families and friends.

History

The Brain Tumour Charity was created in 2013 through the merger of Brain Tumour UK,[1] the Samantha Dickson Brain Tumour Trust,[2][3] and the Joseph Foote Trust.[4][5] The Samantha Dickson Brain Tumour Trust was founded in 1996 by Neil and Angela Dickson, whose daughter Samantha died of a brain tumour when she was 16 years old.[6] Andy Foote founded The Joseph Foote Fund in 2007 after his son, Joseph, died of a brain tumour. The Foote family began raising funds for research into the causes and treatment of brain tumours. In 1997, the UK Brain Tumour Society was founded, later becoming Brain Tumour UK.

Activities

Research and research funding

The Brain Tumour Charity funds a portfolio of research across the UK with the aim of doubling survival rates and reducing long-term harm by identifying better diagnostic techniques and new treatments. Funding is awarded through competitive peer reviewing processes and assessments made by their independent Grant Review and Monitoring Committee (GRAM).[citation needed]

Support and information services

The charity provides free information and support services which allow people personally affected by brain tumours to access support. The services are focused on improving quality of life.[7]

Raising awareness, policies and campaigns

HeadSmart

The Brain Tumour Charity's primary awareness campaign is HeadSmart, which aims to educate the public and healthcare professionals about the signs and symptoms of brain tumours in children and young people, to reduce diagnosis times, to save lives and to reduce long term disability. The campaign's goal is to reduce diagnosis times to four weeks or less in line with NHS targets.[8][9][10]

Raising awareness of brain tumours

The charity campaigns on a range of issues that affect people affected by a brain tumour. They engage with politicians, policy makers and other influential stakeholders within the health sector, including responding to government consultations. The charity also works with like-minded organisations and networks across the UK to better understand local healthcare issues.

In 2015 the charity commissioned a research project 'Living with a brain tumour',[11] in partnership with an independent research agency. The research investigated the lived experience of adults with a brain tumour. Two publications have results from the research:

  • 'Losing Myself: The Reality of Life with a Brain Tumour' – this report demonstrated the extensive effect that brain tumours have on the daily lives of those affected.
  • 'Finding Myself in Your Hands: The Reality of Brain Tumour Treatment and Care' – this report outlined the findings related to respondents' experiences of their NHS treatment and care.[12][13]

Manifestos

Ahead of the 2015 United Kingdom general election, The Brain Tumour Charity released a manifesto on brain tumours. It outlined measures that could help survival outcomes and quality of life for those affected by brain tumours.[citation needed] The charity have also released manifestos ahead of the devolved nation elections in 2016.[14]

Partnerships

The Brain Tumour Charity collaborates with a number of other organisations, including Cancer Research UK,[15] Marie Curie Cancer Care Medical Research Council, Children with Cancer UK, Action Medical Research, and Great Ormond Street Hospital.[16]

Institutions that they have funded include Imperial College London, Institute of Cancer Research,[17] Newcastle University, the University of Nottingham,[18] Queen Mary University of London, University of Birmingham, University College London, University of Glasgow and University of Leeds.

See also

References

  1. ^ "Brain Tumour UK Charity Charity Commission Registration". The Charity Commission. 8 Jan 2020.
  2. ^ "The Brain Tumour Charity Charity Commission Registration". The Charity Commission. 8 Jan 2020.
  3. ^ "How The Brain Tumour Charity merger provided the key to growth". charitytimes. 24 June 2015.
  4. ^ "The Brain Tumour Charity Charity Commission Registration". The Charity Commission. 8 Jan 2020.
  5. ^ "Brain Tumour UK set to takeover Joseph Foote Trust". charitytimes. 28 February 2012.
  6. ^ "Neil and Angela Dickson among those honoured". Basingstoke Gazette. 2 January 2015.
  7. ^ "The Brain Tumour Charity has been certified by The Information Standard as a provider of high quality health and social care information". NHS England - The Information Standard.
  8. ^ "About HeadSmart | HeadSmart". www.headsmart.org.uk.
  9. ^ "Son's brain tumour was size of a fist..." Express. 5 April 2016. Retrieved 11 April 2016.
  10. ^ "HeadSmart - Using research to inform the public about brain tumours". Association of Medical Research Charities. 18 July 2014. Retrieved 11 April 2016.
  11. ^ "New project announcement with The Brain Tumour Charity". Alterline.
  12. ^ "Women and low-income patients 'twice as likely to suffer delays in brain tumour diagnosis". The Guardian. 11 January 2016.
  13. ^ Dean, Erin (January 2016). "Caseloads may be limiting patient access to clinical nurse specialists". Cancer Nursing Practice. 15: 16–17. doi:10.7748/cnp.15.1.16.s19.
  14. ^ "Brain tumour survivors in Wales call for more support". ITV News. 3 March 2016.
  15. ^ "Our research on brain tumours". Cancer Research UK. 25 July 2017.
  16. ^ "Scientists target children's brain tumours in £4 million research programme". Great Ormond Street Hospital. 14 February 2016.
  17. ^ "Scientists target children's brain tumours in £4 million research programme". The Institute of Cancer Research.
  18. ^ "Children's Brain Tumour Research Centre". The University of Nottingham.