Epilepsy Action

For the unconnected Australian epilepsy organisation, see Epilepsy Action Australia.

Epilepsy Action
Formation5 September 1950; 74 years ago (1950-09-05)[1]
FounderLady Cynthia Colville[1]
TypeCharitable organisation
Registration no.234343[2]
HeadquartersYeadon, West Yorkshire, United Kingdom
Coordinates53°51′52″N 1°41′39″W / 53.86441°N 1.69408°W / 53.86441; -1.69408
ServicesEpilepsy advice and information
Membership (2023)
7,494[3]
President
Margaret Ford, Baroness Ford[3]
Chair
Jane Riley[4]
Chief executive
Philip Lee[3]
Revenue (2023)
£2.77m[3]
Staff (2023)
75[3]
Websitewww.epilepsy.org.uk
Formerly called
British Epilepsy Association (1950-2002)

Epilepsy Action is a British charity providing information, advice and support for people with epilepsy.

Activities

Epilepsy Action provides freephone and email helplines and a wide range of information booklets, web pages and e-learning courses. It has around 100 local support groups across England, Wales and Northern Ireland and a network of volunteers working in the community. It also organises conferences for people with epilepsy and health professionals with an interest in the condition. It also has a website that includes information about epilepsy.

It undertakes and encourages non-laboratory research into epilepsy and the issues surrounding living with the condition.

Since 2008, the charity has organised the annual Bradford 10K athletics race which in 2019 attracted 3,000 runners.[5]

Campaigns

The charity has received international media coverage on a number of occasions due to its work in highlighting bad practice in online videos in relation to photosensitive epilepsy.

  • In 2007, it claimed that 30 people had seizures as a result of a segment of animated footage commissioned by the organising committee of the London 2012 Summer Olympics to promote its logo.[6][7]
  • In 2011, Epilepsy Action highlighted issues with the video for the Kanye West song "All of the Lights". Tests of the video showed that it failed the flashing images guidelines set down by UK broadcasting watchdog Ofcom and so was likely to trigger a seizures in someone with photosensitive epilepsy. A warning was placed on YouTube for people watching the video on its website.[8]
  • In 2015, it highlighted the presence of advertisements with flashing content that were posted on Vine by Twitter. The Advertising Standards Authority confirmed that Twitter were in breach of its guidelines.[9]

References

  1. ^ a b "Epilepsy Action History Wall 1950-2010" (PDF). Epilepsy Action. Archived from the original (PDF) on 4 October 2015. Retrieved 16 March 2023.
  2. ^ "British Epilepsy Association, registered charity no. 234343". Charity Commission for England and Wales.
  3. ^ a b c d e "TRUSTEES' REPORT AND FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 DECEMBER 2023" (PDF). Epilepsy Action. Retrieved 19 May 2024.
  4. ^ "Council of Management". Epilepsy Action. Retrieved 17 March 2023.
  5. ^ "'3,000 runners tackle Bradford's biggest ever 10K'". Telegraph and Argus. 17 March 2019. Retrieved 26 February 2020.
  6. ^ Bond, David (13 June 2007). "Olympics inquiry into logo-launch seizures". ISSN 0307-1235.
  7. ^ "London 2012 Olympics withdraw film after seizures". Epilepsy Action. 6 June 2007. Archived from the original on 23 November 2007. Retrieved 24 March 2023.
  8. ^ "'Kanye West's 'All Of The Lights' Video Gets Epilepsy Warning'". MTV News. 25 February 2011. Archived from the original on 5 May 2014.
  9. ^ "'Epilepsy charity criticises Twitter for flashing ads'". BBC News. 10 July 2015.